It's been a week since my lidocaine infusion. So far I haven't really noticed any difference in been a week since my lidocaine infusion. So far I haven't really noticed any difference in my condition of crps.im still stuck laying down in pain and suffering from the allodynia.my head and face are still throbbing with anxiety ,headaches ,swelling ,sweating and pressure,that starts and stops through out the whole day.very little breaks in beteween.my extreame fatigue is still the same.i will say that my wife is able to touch me now and I'm not as sensitive as I was.it use to hurt and cause anxiety immediately.i wish I had better news to tell.maybe it will get better over the next few weeks.all I can do is keep trying til I find remission or relief.hope everyone is feeling as well as they can be.

I'm so sorry that you are suffering so much. I will keep hoping that you find SOMETHING that is able to give you some relief. I will be thinking of you and sending prayers your way. Hugs.

Thankyou,I've been struggling with this damn disease,,I have allodynia that's crippling at times,the sounds the touch,the anxiety and pressure in my head and face,it's stops and starts all day long now.but it's nice to here from you ,I hope your doing well sweety,how is your body feeling these days ?hope your doing well and feeling well ,Your the best��

I've been a real mess since I fell off a ladder at work back in October and messed up my neck, shoulder, and arm. It's thrown everything out of whack because I can't do most of the things that were helping me (like daily hot baths, using the walker, etc). So it's been rough...especially with a now 19 month old baby girl. But I keep on keepin' on.

I know you've done most things treatment wise...did you ever do desensitization therapy? hurt like a mother...but ultimately was a big help for me. I still have intense sensitivity to touch and sounds but the therapy helped to "normalize" the sensations so I tolerate stuff better...especially when I know it's coming. Sudden stuff still can be devastating...like a bump or breeze. I'm sure you've tried it...but just throwing it out there in case.

Hope you get some relief soon. Take care.

Hi 89danboy,

Thanks for sharing with us.
I am sorry for your suffering. Gentle cyber

Will you be getting another infusion soon?
I am wondering if the lidocaine infusion is supposed to take further effect with additional infusions? (I am sorry, I don't know your whole history.)

Catra has mentioned "desensitization." I have found it important for me to work on desensitization as often as possible. I try to keep a regular daily schedule of working on this.

When allodynia is as severe as you are relating, it can feel so devastating!

I have this often, too. There have been prolonged periods when it felt like nobody could touch me. There are many different types of "touch," for sure.

I have found learning "energy or vibrational medicine" types of techniques very helpful to preparing the area to be eventually touched physically, when the pain response feels too strong for any type of touch.

I am referring to Reiki and other similar modalities. Reiki seems to be the modality most people recognize. (I was a huge skeptic of these types of modalities. I had eventually challenged some practitioners to see what they could do to convince me otherwise. Lol. I was very ignorant as to how helpful these modalities can be with pain, etc. I have since learned a few of these types of modalities.)

I have found I can do this for myself. I have also found I can tolerate more touch with bodywork practitioners offering these types of modalities, in addition to their PT, massage, trigger point work, etc. The process I have found helpful: Employ Reiki or a similar modality first and then slowly/gently begin touching skin, very often getting deeper into tissue, with a very gradual approach.

I hope you find some additional ways to become more comfortable.

(I am not sure which meds you have found helpful, which approaches you have found helpful, if any? Do you use any topical lidocaine? Any topical magnesium? Other substances or approaches which help?)

I hope you feel much more comfortable soon.

With Love and Concern,
DejaVu

I too had lidocaine infusion but mine was paired with Ketamine. I am not sure about lidocaine alone but it takes a few ketamine infusions to really lessen the pain. Little Paw has a great thread on ketamine.

The desensitization works really well! Keep at it, small changes are victories!

Sending you healing to you tonight!