Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 08-12-2016, 11:57 AM #31
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Alaina,
Been wondering how you are doing? Have you noticed whether the trial might have caused you an increase in your pain levels.

Also, are you still planning to have the Ketamine infusions in September?


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Old 08-13-2016, 10:09 PM #32
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Gerry,

I have still been having a hard time getting in touch with my PM since he put the SCS trial in. I see him on Wednesday and am going to let him know how disappointed I am with him not returning any of my calls. It seems to me like a lack of concern for his patients if something goes wrong. I would like to go in for the ketamine infusions, but if I can not get through to him if I should have some sort of problem after I get home, I do not want him to do any procedures where I might have to try to call him after I leave his office. I will let you all know if I am able to work things out with him later on in the week.
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Old 08-14-2016, 12:25 AM #33
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Quote:
Originally Posted by PurpleFoot721 View Post
Gerry,

I have still been having a hard time getting in touch with my PM since he put the SCS trial in. I see him on Wednesday and am going to let him know how disappointed I am with him not returning any of my calls. It seems to me like a lack of concern for his patients if something goes wrong. I would like to go in for the ketamine infusions, but if I can not get through to him if I should have some sort of problem after I get home, I do not want him to do any procedures where I might have to try to call him after I leave his office. I will let you all know if I am able to work things out with him later on in the week.

Alaina,
You have good reason to be concerned. You have no idea how you will react to the Ketamine. Not sure even after you let him know of your disappointment he will change his treatment of his patients.

Where/how did you find this current doctor you are seeing? Was he recommended by your primary doctor?

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