Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 08-16-2016, 01:13 PM #11
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Hello Littlepaw. Thank you so much for your response and for your thoughts :-) Miserable definitely describes well! There was a strain-turned upper half of body to speak to someone sitting behind me----but now CRPS has also spread to that area :-( Going to look into therapies to 'open space'-thank you. Right now I can't even do anything that stretches that area due to the increase in pain---whenever it seems to calm down I do something that stretches the area and boom-pain flares! I receive massage therapy but I haven't been able to tolerate any work in that area-too painful and really 'gets the pain going'! Good ideas re if I get the injections-thank you so much :-) Hearing your experience makes me a little less worried about trying the injections for this---THANK YOU! Met with doc recently and they may give me some sedation too. Thank you also re your thoughts about U of M....its so difficult to find doctors who are knowledgable and up to date on CRPS! Happy to hear injections were able to provide you some relief in your CRPS foot :-) I hope you are having a low pain day!
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Old 08-16-2016, 01:22 PM #12
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Hello Littlepaw! Thank you so much for your response and for your thoughts :-) Miserable to perfect description! Yes-I did staring the area---turned upper half of body to speak to someone behind me...now the CRPS has also spread to that area :-( I haven't been able to do any stretching----as soon as area seems to be calming down I do something that stretches the area and boom-the pain flares! Going to look into ways to 'open the space'-thank you! I also receive massage therapy regularly but haven't been able to tolerate any work in that area due to horrific pain :-( Hearing your experience with injections has helped me---less fearful of it worsening----we sure do have a lot of tough decisions to make with CRPS! My doc is also considering sedating me----also will discuss the numbing suggestions you gave to me---thank you! I am sorry to hear of your suffering----am happy to hear your back calmed down and that the injections gave you some relief in your CRPS foot :-) Thank you so much also for your response re U of M----its so difficult to find physicians who are knowledgable about and up to date on CRPS-as I am sure you know ;-) I hope you are having a low pain day and find many reasons to smile everyday :-)
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Old 08-16-2016, 03:00 PM #13
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Quote:
Originally Posted by wonderwoman View Post
So sorry Marleen :-( Wish I could say something to make you smile. Way too long to have such suffering :-( I pray you are having a low pain day. Happy (early) Birthday!
Aw thank you, you are so sweet!

Don't worry about me too much, you have your own set of issues to deal with!!! I have lived with this for 21 years, almost - it's not gonna kill me. If anything it has helped me grow so strong (while being yet so fragile). I don't know if anyone can relate to that feeling.

Wishing you well!
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All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 08-20-2016, 02:09 PM #14
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Thank you Marleen! You got that right---strong yet fragile! Yes we all have so many issues to deal with due to CRPS---I am very thankful that you reached out to me---I hope I am able to somehow help you battle your struggles too----kindness is such a blessing---thank you!
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