Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-30-2017, 12:28 PM #21
Shay08 Shay08 is offline
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Shay08 Shay08 is offline
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Originally Posted by Hotfoot53 View Post
Thanks Shay- that is a good idea to post a new thread-
I have trouble focusing on tasks in order and it's especially obvious to me when I post here. It's likely the gabapentin and uncertainty of things now. I'll post it. Thanks for the positive response-I will do something- idk what yet...Hotfoot 👣
Saw your new thread and I hope you get some good responses. Don't get discouraged if you don't see many positive responses. It is possible that many of the people who have managed to get back to work don't get too involved on the forum: too busy.....too tired..... or just don't need the support or have the time to participate. I do know that they are out there. I have met them when I have gone for my infusions and I have heard from some on other support groups.

Also, your meds, stress levels, and pain can all affect your ability to focus on anything. Members here understand that. We have all been there.

Shay
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Littlepaw (01-30-2017)

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Old 01-30-2017, 10:53 PM #22
Hotfoot53 Hotfoot53 is offline
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Originally Posted by Shay08 View Post
Saw your new thread and I hope you get some good responses. Don't get discouraged if you don't see many positive responses. It is possible that many of the people who have managed to get back to work don't get too involved on the forum: too busy.....too tired..... or just don't need the support or have the time to participate. I do know that they are out there. I have met them when I have gone for my infusions and I have heard from some on other support groups.

Also, your meds, stress levels, and pain can all affect your ability to focus on anything. Members here understand that. We have all been there.

Shay
Thanks Shay! I appreciate your encouragement and support! I'll see if anyone shares on that thread,and I appreciate you expressing understanding about my focus problem. It helps!
Hotfoot👣
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Old 01-31-2017, 12:35 PM #23
lili85 lili85 is offline
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Default I'm new and probably wrote too much...RSD so painful i cannot think

Hi all. I was just diagnosed with RSD 2.5wks ago & was told I'll never dance again. The injury is 2 years old and I've got a lot of damage. I just wanted to introduce myself without disturbing this thread & also have questions but I've read your responses...I learned from back surgery...no needles. For me, I'm to scared of needles now. No nerve blocks. There's research that states it's no more effective then pain medication, PT, etc... I'm sure it works for some...but not me. I finally gave in after 10 years & take pain medication. Do they have a ketamine pill? I heard about a ketamine topical? I can't do an infusion. I'm done with all needles! I've been given Lyrica. What I wanted after 15 years of chronic pain was more pain medicine! I changed my medicine TO A LOWER DOSE (before RSD) and filled it every 2 to 4 months. Then I broke my foot. My doctor of 12 years left the practice. My new doctor doesn't know me. Doesn't know RSD. He is awful (PCP, Same practice). I'd love to switch practices but it's hard to go and say "Hi, I'm opioid tolerant. Every medicine makes me sick but methadone. May I have two, please"? [ I'm over-the moon-happy that this Lyrica seems to work, but it also seems to dissipate quickly...does anyone notice that?] THANK YOU FOR BEING HERE
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Old 01-31-2017, 09:32 PM #24
Hotfoot53 Hotfoot53 is offline
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Default Hey Lili85 - sorry that you have all this together glad you found here

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Originally Posted by lili85 View Post
Hi all. I was just diagnosed with RSD 2.5wks ago & was told I'll never dance again. The injury is 2 years old and I've got a lot of damage. I just wanted to introduce myself without disturbing this thread & also have questions but I've read your responses...I learned from back surgery...no needles. For me, I'm to scared of needles now. No nerve blocks. There's research that states it's no more effective then pain medication, PT, etc... I'm sure it works for some...but not me. I finally gave in after 10 years & take pain medication. Do they have a ketamine pill? I heard about a ketamine topical? I can't do an infusion. I'm done with all needles! I've been given Lyrica. What I wanted after 15 years of chronic pain was more pain medicine! I changed my medicine TO A LOWER DOSE (before RSD) and filled it every 2 to 4 months. Then I broke my foot. My doctor of 12 years left the practice. My new doctor doesn't know me. Doesn't know RSD. He is awful (PCP, Same practice). I'd love to switch practices but it's hard to go and say "Hi, I'm opioid tolerant. Every medicine makes me sick but methadone. May I have two, please"? [ I'm over-the moon-happy that this Lyrica seems to work, but it also seems to dissipate quickly...does anyone notice that?] THANK YOU FOR BEING HERE
Lili85-
Wow- you've got a lot going on right now and I'm sorry that it's coming at you at once. I can empathize. We all have different stories, meds,and treatments.
I am currently having a really lousy time of things, and despite that, I remain optimistic because it lowers my pain level to keep optimistic.
I use the protect-0-meter app for iPad and "explain pain" methods to manage pain. It helps a lot and doesn't have a needle.
I hope you feel better soon, it's a lot to tackle all at once- so while I'm sorry you need to be here, you've found a group who understand like living with pain.
Hugs- Hotfoot53
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