SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.


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Old 01-05-2016, 09:38 AM #31
eva5667faliure's Avatar
eva5667faliure eva5667faliure is offline
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Location: new jersey
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eva5667faliure eva5667faliure is offline
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eva5667faliure's Avatar
 
Join Date: Aug 2011
Location: new jersey
Posts: 3,523
10 yr Member
Default Dear Debi

Quote:
Originally Posted by St George 2013 View Post
So sorry I just saw your posts to me from Dec 24th

I've really tried to 'talk' myself into 'liking' the SCS during the trial but I just don't think it helped much.

If I can't sit and have my hair done, go home and rest for a few hours and then go out to dinner (parked right in front of the restaurant) without limping out of the place in horrible pain then I don't think it was a success.

I've heard others say they were upset when the trial was removed because it helped them so much.....it was just a huge relief to me when they took it out.

My daughter said she didn't see a different in my pain with the trial.....my son says he doesn't think the trial lasts long enough to get a good indication whether it will work or not.

My next pain appointment is tomorrow afternoon. Since I'm not going to go with the permanent SCS I'm going to talk with him about titrating down off the BuTrans patch and try another long acting medication.

I'm scared to titrate off of the BuTrans but I've only tried 3 pain medications and I'm on 2 of them now so I haven't explored other medications.

Oh I don't know......I'm in pain from cooking on Sunday (stupid idea) and I'm tired of hurting and not being able to do Anything at all. Forget making any plans other than going to see the dr......I have absolutely NO idea how I'm going to feel from one day to the next. I just want to scream my head off it's so frustrating ! And my Bubba isn't here to say "are you ok ? Can I get you something?".......alone and in pain is so much worse than being in pain with someone by your side.

Hug your families and friends tight and let them know how much they mean to you. It really will make a difference

I know I'm preaching to the choir but thanks for listening. I sincerely appreciate it my friends.

Debi

Are you okay?
Can I get you something?

Do I feel you loss
Absolutely
And you will not go through this
by yourself
You have a group of people
But most of all
Bubba's love lives in you
Only you know what he gave you in your life
with him
The very first time you met him
That very first time
Remember and enjoy it
You love each other even more
As each are in a different world
You still in human form
Children, grandchildren a new beginning
The cycle of life
You will meet and be connected as one again
Until then
Pay attention to his presence when you call upon him
I have no more words to express
God is good
In Jesus I trust
Mother Mary I respect
What she had to go through as a mother
Be well
I pray
Dear Lord
Hear it prayers
Amen
Love
Me
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eva
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"Thanks for this!" says:
EnglishDave (01-05-2016), PamelaJune (01-07-2016)

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Old 01-06-2016, 09:31 PM #32
St George 2013 St George 2013 is offline
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Join Date: Sep 2013
Location: Georgia
Posts: 905
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St George 2013 St George 2013 is offline
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Join Date: Sep 2013
Location: Georgia
Posts: 905
10 yr Member
Heart Oh sweet Eva !

Quote:
Originally Posted by eva5667faliure View Post
Are you okay?
Can I get you something?

Do I feel you loss
Absolutely
And you will not go through this
by yourself
You have a group of people
But most of all
Bubba's love lives in you
Only you know what he gave you in your life
with him
The very first time you met him
That very first time
Remember and enjoy it
You love each other even more
As each are in a different world
You still in human form
Children, grandchildren a new beginning
The cycle of life
You will meet and be connected as one again
Until then
Pay attention to his presence when you call upon him
I have no more words to express
God is good
In Jesus I trust
Mother Mary I respect
What she had to go through as a mother
Be well
I pray
Dear Lord
Hear it prayers
Amen
Love
Me
Thank you so much ! Your first 2 lines made me laugh and boy I needed to laugh ! I felt like it was coming straight from Bubba right through you !

All you say is correct.....he lives on in my heart and soul.....in my children and grandchildren, in every life he touched.

I push all the bad memories away and treasure the good memories and hold them tight to my heart.

Thank you dear friend for your caring, loving heart.

Debi
St George 2013 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eva5667faliure (01-09-2016), PamelaJune (01-07-2016)
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