Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 05-27-2012, 10:12 PM #1
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Default Lost & Found: What brain injury survivors want you to know.

Here's a great article for you to show your friends and family.

My apologies if this has been posted before.

http://m.brainline.org/#content/content.php?id=5498

I'm browsing from my phone, so the link is for the mobile version of the website. Hopefully it will redirect you to the non-mobile version when you click it...if not, I'll find the correct link and post it later.

Nick
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What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid, Medicare and SSI.

Current symptoms: Brain fog, mild memory issues, problems with spontaneity, occasional spacing out, word finding difficulties, tinnitus in right ear and some other things that I can't explain.

Life after the brain injury: 4 years after the injury, I'm engaged to my beautiful girlfriend of 5 years, I'm the CEO of my own business, Notorious Labs, I've taught myself how to program complex games and apps which is a feat I never thought I'd accomplish and now live a semi-normal life with very mild PCS symptoms.

Slowly but surely regaining my life back.
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Old 05-28-2012, 12:54 AM #2
Mark in Idaho Mark in Idaho is offline
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Thanks Nick,

The link works fine for a computer browser. This web page is great. It says the simple truth without pulling any punches.

Many would do well to print it out and keep a copy on hand for those occasions when you need to explain your condition but do not have the energy.

You can sign up for the Brainline newsletter and Facebook site.
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Old 05-28-2012, 02:07 AM #3
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Thank you for this. I'm caring for my 13 y/o daughter who has PCS (2nd time) and I'm finding it exhausting to try and explain things to family/friends--I may well use this as well to help her school better understand what she is coping with when she goes back next fall.
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Old 05-28-2012, 05:09 PM #4
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Wow. This just really says it all. Simple, yet impressive.
Imagine: Wouldn't it have been great to have been handed this at the ER, or from whatever support group or wherever, way-back-when?
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50s Babyboomer; 2008 high-impact rear-ended/totalled-MVC, closed-head injury->pcs ... "Still dealing with it."
1993, Fell on black ice; first closed-head injury; life-altering. // 2014 Now dealing with Peripheral Neuropathy, tremors, shakiness, vestibular disorder, akithesia, anhedonia, yada yada, likely thanks to rx meds // 2014: uprooted to the cold wet gray NW coast, trying to find a way back home ... where it's blue sky and warm!
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Each and every day I am better and better. I affirm and give thanks that it is so. // 2014-This was still true for me last year, I truly felt this a year ago. Unfortunately it holds no meaning for me now. Odd, it was the Theta mantra for years. Change change change.
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Old 05-28-2012, 05:20 PM #5
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Theta Z, no kidding!!! I am going to print a few out at work to give to my parents, and a couple to hang onto for when I feel like someone just doesn't get it anymore. This is an awesome link, thank you, Nick, for posting it!! So perfect!
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March 2007, Oct. 2007, and Jan 2012 concussions sustained in martial arts/police academy training; suffering from PCS symptoms of fatigue/exertion problems,tinnitus,dizziness, overstimulation issues, photophobia. Also suffer from PTSD.

So we do not lose heart. Though our outer nature is wasting away, our inner nature is being renewed every day.
2 Corinthians 4:16

Last edited by Dolfinwolf; 05-28-2012 at 08:23 PM.
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Old 05-28-2012, 07:57 PM #6
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Great link! Thanks for posting Nick!
I've reposted it several places today, I figure the more that read it, the better!
Starr
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Old 05-29-2012, 09:07 AM #7
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Thx for the link. It is precise and concise and most of us here can completely relate. Problem is many people cannot relate (including doctors). I am training my cousin psychiatrist who is a psychiatrist and my uncle who is an MD about all this.

They still think with some medicines and something they can "fix" it. Now they read and attend conferences and start to realize that is not the case.

Also I personally know people with mild to severe TBIs including some seniors and except severe TBIs (who lost some functions like short term memory, cannot use much one side body) but other TBI survivors has no or minimal issues. Even they are seriously confused about all my symptoms

Seems like I am unlucky in that aspect with poor recovery but I still see some progress. Downs is what tough to handle after I see ups. Almost like a hangover But this link is great. I am sure going to forward this to some people.
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Old 05-29-2012, 10:10 AM #8
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Thanks Nick, I posted this link to my Facebook page.
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What Happened: On November 29, 2010, I was walking across the street and was hit by a light rail commuter train. Result was a severe traumatic brain injury and multiple fractures (skull, pelvis, ribs). Total hospital stay was two months, one in ICU followed by an additional month in neuro-rehab. Upon hospital discharge, neurological testing revealed deficits in short term memory, executive functioning, and spatial recognition.

Today: Neuropsychological examination five months post-accident indicated a return to normal cognitive functioning, and I returned to work approximately 6 months after the accident. I am grateful to be alive and am looking forward to enjoying the rest of my life.
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Old 05-29-2012, 12:52 PM #9
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I just sent the link to some of my friends and family so they might be able to understand better what it is I'm dealing with. Thanks for posting this!
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Old 05-29-2012, 08:04 PM #10
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Me too, so clear even my kids will be able to explain what's happened to mummy
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