Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 01-31-2016, 06:26 PM #1
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Default NTOS sugery postive outcome?

I am a 27 year old male with bilateral core NTOS from bad posture and weight training diagnosed from Gilerbet at UCLA. Has anyone has a first rib resection with good results. I just saw him and he said that he has had no nerve injuries and 30% of the time the patient gets 100 % relief and 90% of the time they get good results. I Have bilateral arm and LEG pain lol. please share your story.
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Old 01-31-2016, 09:17 PM #2
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You can do a search for NTOS surgery.
http://neurotalk.psychcentral.com/search.php
Most post op for NTOS that have posted here have had mixed /poor outcomes with surgery. The nerve gets very angry and some develop internal scar tissue that can become a problem later on..

Questions..
How long have you had symptoms?
How long for the leg pain? Are you hips & shoulders uneven? If so find a really good chiro first..Any head injuries/whiplash ever? check out - www.upcspine.com
Have you had some expert PT , worked on posture & addressed any possible misalignments (expert chiro)?
PT/DC won't fix things overnight , unless there might be some major misalignment causing trouble..
If there's any chance you can seek out some expert healing PT/DC that is my suggestion..
Most of us suggest avoiding surgery if you can..

I'm sure many do ok with surgery, but they don't post here much at all.
Some pro athletes can go back to the sport, but if you read the team injury reports they often don't last long at it..
When it does go bad post op, not a lot of options left other than meds..
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Old 02-01-2016, 05:49 AM #3
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Quote:
Originally Posted by micaheldorseyNTOS View Post
I am a 27 year old male with bilateral core NTOS from bad posture and weight training diagnosed from Gilerbet at UCLA. Has anyone has a first rib resection with good results. I just saw him and he said that he has had no nerve injuries and 30% of the time the patient gets 100 % relief and 90% of the time they get good results. I Have bilateral arm and LEG pain lol. please share your story.
What Jo*mar said. All these percentages need to be qualified with a grain of salt.

You are in the PT capital of the US. Try the Edgelow protocol to control your flares and work from there..
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Old 02-01-2016, 08:36 AM #4
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Quote:
Originally Posted by micaheldorseyNTOS View Post
I am a 27 year old male with bilateral core NTOS from bad posture and weight training diagnosed from Gilerbet at UCLA. Has anyone has a first rib resection with good results. I just saw him and he said that he has had no nerve injuries and 30% of the time the patient gets 100 % relief and 90% of the time they get good results. I Have bilateral arm and LEG pain lol. please share your story.
Hi,
What are your symptoms in legs? I have bilateral ntos and leg issues .I get cold feets , twitching and some odd sensations in my feet.


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Old 02-02-2016, 08:47 AM #5
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If your cervical/lumbar MRI screen was ok, then its most likely your arched lower back causing issues. Try a relax position everyday, feet propped up on pillows so arch in back reduces.
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Old 02-02-2016, 06:33 PM #6
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If you bulked up neck muscles with the weight training , those can crowd & pinch nerves too. Especially if the neck/shoulder/head posture makes for a smaller area also..

It can be a space problem , all the nerves & the bloom flow need to go thru quite a small area, things happen and it gets too closed off.
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Old 03-02-2016, 05:23 PM #7
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Quote:
Originally Posted by micaheldorseyNTOS View Post
I am a 27 year old male with bilateral core NTOS from bad posture and weight training diagnosed from Gilerbet at UCLA. Has anyone has a first rib resection with good results. I just saw him and he said that he has had no nerve injuries and 30% of the time the patient gets 100 % relief and 90% of the time they get good results. I Have bilateral arm and LEG pain lol. please share your story.
Success stories do not go onto forums and post. It is the sad truth. Most people who browse on this site are still looking for answers and are still in pain to some degree.
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Old 03-22-2016, 01:49 PM #8
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Success stories do not go onto forums and post. It is the sad truth. Most people who browse on this site are still looking for answers and are still in pain to some degree.

This is true but it is also true that Physician's success rates are absolute garbage. They will consider it a success if nothing goes wrong during the surgery. They will not take into account what happens after the surgery. I was written off by the doctor who did my TOS surgery and I am pretty sure they lumped me into the "success" category. So far it has been the exact opposite of success and I was way better off before the surgery. Different people scar at different rates. They will tell you that they use this polysorb surgiwrap around your nerves during the surgery to prevent scarring. They used this on me and my post op MRI still shows scarring on the nerve roots, trunks, and cords of the brachial plexus. MRIs normally don't even pick up scar tissue on the scan unless there is a significant amount meaning the polysorb surgiwrap was ineffective in my case.
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Old 03-22-2016, 09:38 PM #9
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This is true but it is also true that Physician's success rates are absolute garbage. They will consider it a success if nothing goes wrong during the surgery. They will not take into account what happens after the surgery. I was written off by the doctor who did my TOS surgery and I am pretty sure they lumped me into the "success" category. So far it has been the exact opposite of success and I was way better off before the surgery. Different people scar at different rates. They will tell you that they use this polysorb surgiwrap around your nerves during the surgery to prevent scarring. They used this on me and my post op MRI still shows scarring on the nerve roots, trunks, and cords of the brachial plexus. MRIs normally don't even pick up scar tissue on the scan unless there is a significant amount meaning the polysorb surgiwrap was ineffective in my case.
Are you eligible to have the scar tissue removed? Would you ever do that? Or is it just not worth the risk?
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Old 03-23-2016, 01:06 PM #10
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Are you eligible to have the scar tissue removed? Would you ever do that? Or is it just not worth the risk?
They don't want to open me back up seeing as how the first operation went. If they go in again and take more scar tissue out, the body will just react like it did the first time and plant down even more scar tissue causing more problems. There is a reason only a handful of doctors perform this surgery regularly throughout the country. They used to do this operation a whole lot more several years ago but most physicians stopped doing it altogether because of all the complications. It is a very tricky surgery that takes more than 5 hours to complete.
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