Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 07-18-2016, 07:13 PM #21
cerebellarmaniac cerebellarmaniac is offline
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Quote:
Originally Posted by RidingRollerCoaster View Post
Cerebellarmaniac...

What symptoms led your neuro-otologist to believe that you have SCDS if you don't have the loud body sounds?

What was the outcome of your tests?

Thank you!
It seemed like he walked in the room with the idea that I had SCDS. He reviewed my reports and asked a few questions. My VEMPs are abnormal and I think that means SCDS is a possibly. Although a few other things are possible, according to my research. I also indicated that I have trouble in loud places.

I still am awaiting my CT scan. I'm in Canada and the medical system is quite slow for non life-threatening health issues. The system needs reform, but that is another conversation.

The doctor who I saw is older and to be honest doesn't seem like he is in his prime any more.

If I don't have SCDS I am confident that there is something else going on with the peripheral vestibular system (possibly a nerve).

I am going to try to get in touch with my family doctor to see where things are...
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Large deep left-hemisphere cerebellar lesion removed in early 2013. Age of surgery 22.
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Old 07-22-2016, 02:33 PM #22
russiarulez russiarulez is offline
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I suggest maybe creating another thread about SCDS to get out of this one about PF.

When I was researching PF I also discovered info about SCDS as well and read up on it quite a bit as many of the symptoms overlap. I couple of doctors familiar with it seemed to rule it out for me.

When you said that your doctor walked into the room with a diagnosis already in his head it struck a familiar not e with me. My doctor who did my PF surgery seemed to be sure that it was PF from the very first appointment even before any of the tests. And then when the tests were inconclusive he still pressed me on for the surgery even though the day before the surgery he decided to switch ears. At that time I was desperate to do something about my condition and was so sure that it is PF that I agreed to it. After getting the bill I know why the doctor pressed on.

That doctor was an older gentleman in his late 70s/early 80s and retired two months after my surgery.
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12/02/2012 - Light concussion at boxing practice. Ended up having PCS for about 3 months.
March 2013 - Thought that since most of my symptoms resolved I could start having fun again.
Went snowmobiling once (didn't hit my head) and concussion symptoms returned and got even worse than before.
June 2013 - accidentally bumped my head against a deck railing, and had a month-long setback.
November 2013 - drove to work after a big snowstorm and the roads were very rough, ended up having another setback.
2014 - Having setbacks after coughing/sneezing too much, or someone slapping me on the back, or any other significant jarring.
Feb 2014 - Started seeing Atlas Orthogonal chiro - most helpful doc so far.
June 2014 - Two months of physical/visual therapy - no noticeable improvement.
September 2014 - Diagnosed with Perilymph Fistula in right ear.
November 2014 - Fistula surgery (switched to left ear before the surgery after additional testing).
January 2016 - Quit work to "work" on figuring out PCS, so far it seems that eyes/vision issues are the most contributing factor, especially computer work.

Current symptoms are: inconsistent sleep patterns, headaches, vertigo/dizziness, anxiety/panic attacks, mental fog/problems with concentration, problems with computer screens.
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