Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 01-25-2016, 03:39 PM #1
reedrube reedrube is offline
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Default Neuroendocrinology

Does anyone have any information or experience in Neuroendocrinology? Any names of physicians? Anyone used Dr. Haque in MI or Dr. Gordon in CA? Thanks
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Old 01-25-2016, 03:54 PM #2
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EsthersDoll has worked with an endocrinologist at, I think, UCLA. Maybe someone can find the thread.
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Old 01-25-2016, 04:15 PM #3
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This may help...

Search terms - EsthersDoll UCLA

http://neurotalk.psychcentral.com/post1107118-14.html

That's her post from the thread Neuroendocrine Dysfunction
http://neurotalk.psychcentral.com/sh...18#post1107118
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Old 01-25-2016, 04:51 PM #4
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To get hormone testing done, not necessarily treatment but just testing, do you have to go to an endocrinologist?
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26 year-old PhD student in evolutionary biology, slipped on ice in Feb 2014 while clipping my fingernails and walking to save time (dumbest reason for PCS ever?). Initially just had headaches and didn't feel quite right, but a minor head bump 5 days later started a downward spiral of anxiety, depression, insomnia and fatigue. Had trouble concentrating on reading/looking at screens

April 2014 - did exertion test, passed, started exercising and doing more, but didn't feel much better.

May 2014 - Went on backpacking trip OK'd by doctor, trip itself went fine, but felt worse a few days after getting back, more difficulty concentrating, worse headaches.

June 2014 - Bumped head on ceiling walking slowly down stairs, no immediate symptoms, but caused worsening headahces, more difficulty concentrating and looking at screens. Have not felt as good as I did before this since this bump.

December 2014 - after feeling relatively better I went xc skiing and fell but didn't hit my head (something my psychologist who specializes in brain injuries told me he hoped would happen so I saw it was OK), felt worse

Feb 2015 - back in grad school, light teaching load and some research, nowhere close to operating at my full capacity. Still have constant headaches, difficulty reading/looking at screens, mild anxiety and depression, and just not feeling like my normal sharp self.

Trying, but struggling, to believe that I'll get back to my old self, or at least get close.
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Old 01-25-2016, 05:16 PM #5
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Default Esthersdoll

Esthersdoll, I would love to speak with you further concerning Dr. Friedman. Can I provide you my contact information? Thanks so much, Reed
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Old 01-25-2016, 06:03 PM #6
Mark in Idaho Mark in Idaho is offline
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EsthersDoll does not follow NT regularly of late. She pops in from time to time. She has only posted 2 times in the past 2 months.

If you read her threads, you will find lots of comments about her experience.

Once you find a post she has made, left click on her screen name and you can select Find more posts by EsthersDoll.

Laupala, Many doctors will test your hormones. Look for doctors who have an interest or specialty in life extension or maximizing performance. Expect to spend about $1500 for the basic testing and consult and maybe more. Few of these doctors are covered by insurance unless you find someone who can justify a medically necessary reason.
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Old 01-25-2016, 07:01 PM #7
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Dr. Gordon in California will test all your blood levels for 1750.
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Old 09-23-2016, 07:40 PM #8
EsthersDoll EsthersDoll is offline
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Hello! Sorry, I haven't been around in a while... just did a random google and found this thread. I'll log back in soon to see if there are any additional questions.

I'm doing so much better than I was with the HRT (Hormone Replacement Therapy.)

I even "met" someone on another forum who suffered a concussion and ended up with hypopituitarism, like me, and who got all better after 7 years of HRT!
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Old 09-24-2016, 10:05 AM #9
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interesting to find this thread right now I have been diving down the hormone rabbit hole as of late.

It seems to be a fairly common occurrence for people that have tbi at some point and for some will take years to develop. I will be interested to hear how it goes for anyone else, I just had my hormones tested and am waiting for results

I had to request it the doctor didn't seem to rink there was much reason to, I am in good shape and manage to exercise, but after reading about it I think it's something we all should do down the road at some point.

YouTube Dr Brandon Brock, he has some interesting takes on concussion and things we can do, lots f which is already recommended on the stickies but I came away with a better understanding of what might be taking place between my ears, and more specifically in the pituitary gland, he is working on a paper right now to do with vets, and if I recall right up to 66 percent had a testosterone deficiency and something like 40 percent had growth hormone deficiency...

I have a habit of grasping at any straws I can find but I have started taking just natural testosterone boosters and placebo or not I feel better.
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PCS since 07/14 Symptoms: Vision(double,tracking, contrasts) Headache, Motion sensitivity, Psych issues, low stress tolerance, minor tinitus, sensitivity to noise and light, sleep issues.
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