Dr Carlson is in Acton, Mass.

Mom,

How often was your son seen and how much did the treatment plan cost ?
What kind of treatment and exercised did he do ?

I know someone by Springfield who may be interested.

Hi Mark,

I paid approx 5k total, which included the initial $400 for the evaluation and 4 1/2 months of treatment. I bought blocks of visits and paid this over time, not one big payment. He was retested frequently and his care was adjusted as we went along. My insurance did not cover any of it because it was considered chiropractic care and my plan did not cover kids for chiro.

When I looked back at not only all of the copays, but all of the places I took him for uncovered treatments (NUCCA, accupuncture, bowen therapy, prescriptions, etc), the costs were actually more for the treatments that didn't help, but the results were not even close. All that time we wasted trying to put the puzzle together ourselves! I saw the payments to other doctors--it was $800 for just one visit to Children's Hospital!

And I also realized the amount of work I missed because he couldn't go to school nor summer camp. That alone was way more money! My job was amazingly supportive, but I didn't know when I would be back and even started wondering if I would ever be able to go back.

We started with 2x a day, 3x a week for 2 weeks. This was right before school started and she wanted him to be able to do school work, so got right to work. He was very bad when he started. At the 2 PTs he was at previuosly, he couldn't even put pegs in the holes of a pegboard. I brought all of his exercises to her to show her what he had been doing for 4 months. She never once spoke badly about any of his doctors. She just told me that the exercises were too advanced for him, so she brought him back to step one and built him up from there. Slowly but surely. And she knew the order to do them in!

When school started, We dropped to 1x a day for 3 days a week, then eventually once a week. We bought blocks of visits, which saved us money. And saved me the +10K plus travel expenses I was going to pay to go to Carrick (for one week of treatment).

His treatments were diet changes, supplements, chiro treatments (gentle), physical exercises and eye exercises. There were no creepy or disturbing treatments. Although seeing him trying to do some of the exercises freaked me out because I didn't know he couldn't even do those things! (For example, he couldn't even move his arm in a circle motion when he layed on his back with his eyes closed!)

She treated the root of the problems and not just the symptoms. I videotaped many of his treatments and, with his permission, just sent them to her so that she can show other patients and use them in her teachings. She is not just Carrick trained--she teaches for Carrick.

She is very humble and caring. I very highly regard her as you can tell. She really is something special...

[QUOTE=hopefulmom;1211972]This has happened to my daughter over the past 5 years.

However she was diagnosed with migrainous vertigo which is a type of migraine that was triggered by the accident. She had never had migraines or headaches before the accident. The theory is that somewhere in her genetics she carried the migraine gene that got triggered or turned on by this accident.

Her symptoms are part PCS and part migraines. If you tickle the migraine enough your symptoms will get worse and worse. I believe her light sensitivity, nausea, vertigo, are part of the migraine. So yes your symptoms can get worse if you continue to tickle the migraine. We had plenty of doctors that prescribed therapy, like vestibular therapy, in which she went backwards and to this day she has not recovered to where she was.

She did a two day test up at UCSF that confirmed this.[/Q


Hopeful mom
How did your daughter get the vestibular migraine diagnosis and what has the treatment been? Any meds? I sometimes suspect I have this and it makes the pcs worse. Thanks

I had excellent care from doctors and other health care professionals following my injury. If I hadn't received immediate trauma care including a life saving craniotomy I simply wouldn't be here


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I am very sorry to hear that you went through that. I am really glad that you survived and had such great medical care!

Please don't get me wrong, our doctors were wonderful too. I am very thankful to all of the medical staff my son had. He bonded with his doctors and physical therapists. All of them were a really important part of helping him--they ruled out many things they thought could have been causing his problems.

There was really only one doctor who we had a really horrible experience with (neuro psychologist), but all the others were great.

Our frustration and biggest hurdle was with finding the rehab that worked for him. I can't help but share his story with those who may are struggling with PCS and are not getting anywhere.

In all honesty, looking back at what we went through, I just wish the medical field and functional neurologists would work together somehow!