Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 09-14-2016, 04:35 AM #11
okrad okrad is offline
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I apologize if this is a double post. Drew.....you made me wonder if PCS is the cause, or one cause, of Mulitple Chemical Sensitivity? I had several head and brain hits when young and was dxed with MCS which is very severe. The way we all seem to have trouble with meds and light and noise and sensory things.......I wonder.

I read your story and it AMAZINGLY similar to those with extreme MCS. I am also mad when they thought you were just mentally ill, bless their hearts. I went through that, too.

Did you know I stopped talking completely for several weeks? I even learned American Sign language which did not help because no one else knew it, so I just started to write things down. It helps so much but makes everyone uncomfortable and people think you're nuts. I may do that again. I find it helps so so much.

As for the "Word Barf?" HAHAHA! OMG! I get so annoyed when people just yammer on and on. Like a torrent of something ungodly and brackish and dangerous. STOP!!!

I do use the computer a lot because it stops the panic in my head. I did not use anything electric for a year!! Even went to the basement and cut off the electric to my room at night and cut the wireless. I went into such a profound, disconnected depression that I DID go crazy. I had no connection and no way to communicate and felt so alone.

At first I did meditate but then I got negative reactions to meditation which some people do. Lots of fear and terror.

So I got the computer back and leave the lights on and it is OK now. I do cut the wireless at night.

I hope you get better. I hope we all get better. Thank you for sharing your story. You have been through a lot.

Last edited by okrad; 09-14-2016 at 04:52 AM.
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Old 09-15-2016, 04:46 PM #12
DrewDigital DrewDigital is offline
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Wow, Can MCS symptoms be caused by medications? How is it diagnosed?

I can totally relate to wanting to learn sign language! I actually considered learning Morse Code so I could tap out messages. But it would have been hard for people to understand..
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Old 09-22-2016, 11:47 AM #13
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I'm sorry but you've taken a small bump to the head, post concussion, and this lead to living life in the fetal position for the next nine months?

Sounds like there are some extenuating circumstances here, not just concussion.
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Old 09-22-2016, 05:33 PM #14
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Quote:
Originally Posted by clandestine View Post
I'm sorry but you've taken a small bump to the head, post concussion, and this lead to living life in the fetal position for the next nine months?

Sounds like there are some extenuating circumstances here, not just concussion.
There can be other head injuries prior or even other illnesses. A bump on the head is never just a bump on the head. Yes, it can and has triggered a series of events in certain people and can indeed disable them. It is scary and misunderstood, but the brain really must be treated with great respect. And Drew fought very hard. Read his story and you will see how much he went through.
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Old 09-23-2016, 02:45 PM #15
DrewDigital DrewDigital is offline
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Quote:
Originally Posted by clandestine View Post
I'm sorry but you've taken a small bump to the head, post concussion, and this lead to living life in the fetal position for the next nine months?

Sounds like there are some extenuating circumstances here, not just concussion.
Yeah that's basically what happened. So I do have Muscular Dystrophy, but that doesn't affect my brain. I did have a mild neck injury but that shouldn't have caused such severe symptoms.

I think it was the medications. The Nortriptyline caused dizziness, vertigo, hallucinations, and electric shocks. How can a medication like that possibly be good for you? The only thing I've changed is going off the medication and I'm doing way better now.

I don't think I'm the only one. I've heard other stories of debilitating symptoms with no explanation other than possible medication side effects.
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Last edited by DrewDigital; 09-23-2016 at 03:00 PM.
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