Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 07-20-2016, 02:08 PM #1
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Default Heart Rate

I have been having problems with my heart rate lately. When my symptoms are really strong my heart rate seems to be more normal, yet even when I exercise during these times my heart still feels like it is pounding hard in my chest. I have been having periods lately where my symptoms are not bad at all and I can read, drive, be in crowds, etc. without much problem (I actually feel good!), but my heart rate and the pounding sensation I get in my chest and some veins is really high. Usually my resting heart rate is 48-54 bpm, but during these times it's 60-70. I will also go through brief moments where my heart rate suddenly drops, but the pounding sensation increases. It makes it extremely hard to fall asleep and settle down. Had anyone had problems similar to this before, and if so what helped? I have done deep breathing and have been trying to exercise as much as possible, but they don't really seem to help.
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Old 07-20-2016, 02:17 PM #2
Mark in Idaho Mark in Idaho is offline
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What is you blood pressure during these different times ?
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Old 07-20-2016, 02:51 PM #3
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Originally Posted by Mark in Idaho View Post
What is you blood pressure during these different times ?
I'm not sure. I am not sure if it would be higher when my heart rate is lower or higher. When I had BPPV my heart rate and blood pressure were higher, but they have gone down since I have gotten that under control. This originally started when I started going out on the lake again kayaking I think. I noticed that in rough water the waves would cause my heart rate to increase a lot.
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Old 07-20-2016, 04:56 PM #4
Mark in Idaho Mark in Idaho is offline
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70 bpm is not fast. My wife's resting rate is 90-100 when her BP is 110/76.

But, before being concerned about your heart rate, you should be checking your BP. BP is the more important number. Home BP kits are affordable.

The sensation of feeling your heart rate is not normal. The brain usually ignores it. When anxiety levels increase, the brain increases its ability to sense a pounding heart just as it increases its sensitivity to every sensory stimuli. The PCS brain has a harder time ignoring things that it should be ignoring.
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Old 07-22-2016, 02:19 PM #5
russiarulez russiarulez is offline
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I had these weird heart issues for about the first year.

At first I would be very aware of my heart rate and pulsation in the head when I laid down to sleep. Made it very hard to fall asleep. Doctor attributed this to anxiety.

Later on I had periods where my resting HR would be about a 100 (my usual resting HR is 50-60) no matter what I did, BP was normal. Doctor attributed this to anxiety.

Then I had the opposite, where it felt like my heart has stopped and I couldn't feel it when I went to bed, that did bring on anxiety for sure.

All of this worked itself out after a while, maybe year and a half or so. I think doing my light aerobic exercises on a stationary bike has helped.

I think Mark is right about the brain not filtering these things out sometimes after the injury, you shouldn't hear your heart beating or your eyes moving for example, but something is messed up and you do. Doctors don't seem to believe this though.
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12/02/2012 - Light concussion at boxing practice. Ended up having PCS for about 3 months.
March 2013 - Thought that since most of my symptoms resolved I could start having fun again.
Went snowmobiling once (didn't hit my head) and concussion symptoms returned and got even worse than before.
June 2013 - accidentally bumped my head against a deck railing, and had a month-long setback.
November 2013 - drove to work after a big snowstorm and the roads were very rough, ended up having another setback.
2014 - Having setbacks after coughing/sneezing too much, or someone slapping me on the back, or any other significant jarring.
Feb 2014 - Started seeing Atlas Orthogonal chiro - most helpful doc so far.
June 2014 - Two months of physical/visual therapy - no noticeable improvement.
September 2014 - Diagnosed with Perilymph Fistula in right ear.
November 2014 - Fistula surgery (switched to left ear before the surgery after additional testing).
January 2016 - Quit work to "work" on figuring out PCS, so far it seems that eyes/vision issues are the most contributing factor, especially computer work.

Current symptoms are: inconsistent sleep patterns, headaches, vertigo/dizziness, anxiety/panic attacks, mental fog/problems with concentration, problems with computer screens.
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Old 07-22-2016, 09:52 PM #6
yncs5729 yncs5729 is offline
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Hi RussiaRulez,

Wife had bilateral plf jan/feb 16 and has is getting first AO adjustment on Monday. many of the same symptoms as you. Would love to email direct as I have a thought for you on something that has helped her and would like to compare a few notes.

contact is **

Regards,

Jack
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Old 07-23-2016, 09:20 AM #7
ConcussedEngineer ConcussedEngineer is offline
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Quote:
Originally Posted by russiarulez View Post
I had these weird heart issues for about the first year.

At first I would be very aware of my heart rate and pulsation in the head when I laid down to sleep. Made it very hard to fall asleep. Doctor attributed this to anxiety.

Later on I had periods where my resting HR would be about a 100 (my usual resting HR is 50-60) no matter what I did, BP was normal. Doctor attributed this to anxiety.

Then I had the opposite, where it felt like my heart has stopped and I couldn't feel it when I went to bed, that did bring on anxiety for sure.

All of this worked itself out after a while, maybe year and a half or so. I think doing my light aerobic exercises on a stationary bike has helped.

I think Mark is right about the brain not filtering these things out sometimes after the injury, you shouldn't hear your heart beating or your eyes moving for example, but something is messed up and you do. Doctors don't seem to believe this though.
I agree that the brain can't filter. I have been telling myself to ignore it as much as possible which helps. I think being out on the water is just a trigger for my vertigo, so I will have to stay off the lake. I have backed off on running and switched to biking which has seemed to help with this a little. Light aerobic exercise seems to help a lot of my symptoms if I know when to stop. I think some of it might be that I am deconditioned too.
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Old 07-23-2016, 10:32 PM #8
russiarulez russiarulez is offline
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Quote:
Originally Posted by yncs5729 View Post
Hi RussiaRulez,

Wife had bilateral plf jan/feb 16 and has is getting first AO adjustment on Monday. many of the same symptoms as you. Would love to email direct as I have a thought for you on something that has helped her and would like to compare a few notes.

contact is **

Regards,

Jack
Jack,

Looks like you can't share your personal info on here. You can send me a Personal Message (PM) on this forum and I'll see it in my PM inbox.
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12/02/2012 - Light concussion at boxing practice. Ended up having PCS for about 3 months.
March 2013 - Thought that since most of my symptoms resolved I could start having fun again.
Went snowmobiling once (didn't hit my head) and concussion symptoms returned and got even worse than before.
June 2013 - accidentally bumped my head against a deck railing, and had a month-long setback.
November 2013 - drove to work after a big snowstorm and the roads were very rough, ended up having another setback.
2014 - Having setbacks after coughing/sneezing too much, or someone slapping me on the back, or any other significant jarring.
Feb 2014 - Started seeing Atlas Orthogonal chiro - most helpful doc so far.
June 2014 - Two months of physical/visual therapy - no noticeable improvement.
September 2014 - Diagnosed with Perilymph Fistula in right ear.
November 2014 - Fistula surgery (switched to left ear before the surgery after additional testing).
January 2016 - Quit work to "work" on figuring out PCS, so far it seems that eyes/vision issues are the most contributing factor, especially computer work.

Current symptoms are: inconsistent sleep patterns, headaches, vertigo/dizziness, anxiety/panic attacks, mental fog/problems with concentration, problems with computer screens.
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Old 07-23-2016, 10:37 PM #9
russiarulez russiarulez is offline
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Quote:
Originally Posted by ConcussedEngineer View Post
I agree that the brain can't filter. I have been telling myself to ignore it as much as possible which helps. I think being out on the water is just a trigger for my vertigo, so I will have to stay off the lake. I have backed off on running and switched to biking which has seemed to help with this a little. Light aerobic exercise seems to help a lot of my symptoms if I know when to stop. I think some of it might be that I am deconditioned too.
If you haven't yet, google "PCS Buffalo Protocol". They do a test until you have symptoms on a treadmill and see what HR is at that point. After that you start to exercise 6 days a week either on a stationary bike or treadmill at 80% of that HR for 20 minutes. Do this for 3 weeks and then retest, and get a new, higher, 80% HR. This is done for about 3-4 months until you can work out at your 100%.

I've been doing this on and off for over a year now. I didn't do the test on myself, just started with a very low HR and went up from there very slowly. I think it helps with my symptoms.
__________________
12/02/2012 - Light concussion at boxing practice. Ended up having PCS for about 3 months.
March 2013 - Thought that since most of my symptoms resolved I could start having fun again.
Went snowmobiling once (didn't hit my head) and concussion symptoms returned and got even worse than before.
June 2013 - accidentally bumped my head against a deck railing, and had a month-long setback.
November 2013 - drove to work after a big snowstorm and the roads were very rough, ended up having another setback.
2014 - Having setbacks after coughing/sneezing too much, or someone slapping me on the back, or any other significant jarring.
Feb 2014 - Started seeing Atlas Orthogonal chiro - most helpful doc so far.
June 2014 - Two months of physical/visual therapy - no noticeable improvement.
September 2014 - Diagnosed with Perilymph Fistula in right ear.
November 2014 - Fistula surgery (switched to left ear before the surgery after additional testing).
January 2016 - Quit work to "work" on figuring out PCS, so far it seems that eyes/vision issues are the most contributing factor, especially computer work.

Current symptoms are: inconsistent sleep patterns, headaches, vertigo/dizziness, anxiety/panic attacks, mental fog/problems with concentration, problems with computer screens.
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Old 07-30-2016, 04:30 PM #10
ConcussedEngineer ConcussedEngineer is offline
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I'm trying to follow that protocol. I don't expect to ever be able to exercise and be conditioned like I was before given that I ran two days after the hit to my head (because I thought I was groggy from the long weekend and just needed to sweat it out unaware of my head hit). I also lifted weights a lot and went trap shooting within the first two weeks unaware of my condition, so I am sure that it will be a long time before this stuff settles out given how much I exerted myself so soon.
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