Susan,
I'm sorry your son is still suffering. I think you need another opinion.
Dr. Harold L. Rekate is one of the top doctors specializing in hydrocephalus (among other things).
Call his secretary (the number's at the bottom of the page):
http://www.bnaneuro.net/barrow_phys_rekate.html
and find out what you need to send to him. I'm assuming MRIs, CT scans, and records probably. But, the secretary will tell you. Make sure that you stress that this is an
EMERGENCY.
This guy is one of the best in the country. He'll tell you what you need to do.
I'm hoping (more than that, praying) that we get Nick balanced back to his old self again.
BIG HUGS.
Barb