I have my doctors appointment tomorrow. So, I should get tests for:

1. Sensory neuropathy complete antibody panel
2. Ganglioside antibodies (all)
3. Celiac antibodies and Celiac DNA test ( I was already gluten free prior to this recent attack though, but I didn't start that until a year ago)
4. Anything general auto-immune or viral titers.

This is very distressing because of not knowing what it is so I don't know the course it will take or what will make it activate or how to cure it, but on the good side it appears to not be one of the really bad conditions.

If I could just get some kind of confirmation that it is the immune system and exactly what antibody and know they are working on a cure to turn off that antibody that would make me feel better.

I also want to ask you about how your condition has behaved compared to mine and discuss other things. I'll send you a PM.

I'd really like to get some auto-immune treatment that I keep seeing promising new reports about, but if I at least know what this is and that it won't get too bad I'll feel much better. It would be even better to know that they are working on an auto-immune stopping treatment that can be used for this and will come out in a few years. The good news is that last time it happened I seemed to completely heal and from what I can tell this is not one of the really bad ones.

Maybe I should start supplementing things to help with nerve healing. I didn't want to take any supplements before I get tests done.

Should I PM you more or reply in thread?

Thank You.