Quote:
Originally Posted by Jennifer C.
Hello,
I am being denied IVIG by my insurance because they say I don't meet the criteria. I had acute axonal motor neuropathy in December and I'm now in a chronic situation. The damage to the axons in my lower legs continues to get worse and the damage is now affecting my muscles. Does anyone have thoughts/advice about IVIG for my situation? My neurologist says that this is my best hope, but I've been denied 3 times. The insurance company says that IVIG is not a helpful treatment for axonal degeneration. I would appreciate any help anyone can give.
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Not helpful to you, unfortunately, but my understanding is that IVIG is not helpful in axonal neuropathies, only chronic demyelinating ones.
Have hereditary neuropathies been ruled out? I have axonal neuropathy, progressing rather more rapidly than they say a hereditary neuropathy should be, but that is what it is. I am losing strength in my arms as well as my legs.