Hi Rachel,
Welcome back, I´m glad to hear of you but sorry for your condition which is giving you again some problems...
Neurological disorders are effectively giving some hard times to doctors whatever their specialty is!
I´m still around too, waiting for better time, with my Pred at 7 mg/d, 5 x 60 Mestinon daily and one PLEX every 7 weeks (next target 8 weeks...).
I quit Cellcept 18 months ago without any problem due to lack of effect.
Last month we took a week cruse from Venice to Athens for our 50th wedding anniversary and I was able to cope with all the sightseeing challenges but climbing to the top of the Acropolis in the heat was quite rewarding.
I wish you the best,
Maurice.