Hi! So glad to find a place where there are others dealing with the same thing.
I have a good dr., take Gabapentin & pyridostigmine, and SubQ-Ig 3 x wk. that seems to hold the wolves mostly at bay (terrible flu like immune reactions, worsening nerve damage) but not entirely.
Just saw my dr and felt let down for 1st time, as he was my hero for diagnosing me! This time tho, he wanted to pull me off the Ig, didn't do blood tests for liver function post lots of Meds, and the main reason for disappointment- dr seemed to say that my bradycardia, lung stress(feelings that it is hard to breathe in), and renewed bladder issues were , unlike what I understood, not because of the SFN. ? So, did he forget the ganglionopathy or should I see some other type of doctor to resolve the issues?