Hi, I was Dxed by dr out of WashU... Very thankful. However, just this past appt., was told that some symptoms that I understood to be part of NonLengthDependent SFN/Ganglionopathy maybe aren''t: bradycardia attacks, perceived difficulty inhaling, bladder issues, all of which I thought was part of various of my ganglia flaring up at various times... Do I need to remind doc of nonlengthdependent "status"?; is it the ganglia? Or might I have something else as well???
Advice, please