Quote:
Originally Posted by Akashenov
Hi, I was Dxed by dr out of WashU... Very thankful. However, just this past appt., was told that some symptoms that I understood to be part of NonLengthDependent SFN/Ganglionopathy maybe aren''t: bradycardia attacks, perceived difficulty inhaling, bladder issues, all of which I thought was part of various of my ganglia flaring up at various times... Do I need to remind doc of nonlengthdependent "status"?; is it the ganglia? Or might I have something else as well???
Advice, please
|
There is an autonomic ganglia...and your symptoms might be related to autonomic dysfunction/dysautonomia. Have you had any autonomic testing...like heart monitor for the bardycardia, tilt table, urodynamic studies for the bladder issues, etc? Do you have problems with GI (early fullness, nausea after eating, bloating, etc)?
If you have ganglionopathy from autoimmune disease, then I would suspect the autonomic ganglia as well. Any autoimmune work up?