Junior Member
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Join Date: Apr 2013
Location: Chicago Area
Posts: 46
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Junior Member
Join Date: Apr 2013
Location: Chicago Area
Posts: 46
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I too was diagnosed w non length dependent sf ganglionapathy and also have related autonomic issues. My first neurologist seemed to have no idea about the non length dependent distinction, but johns hopkins came through. Symptoms started in my back and are now basically full body from my scalp to my toes, though each day is different as to which body parts have symptoms, generally don't have all at same time. Originally was diagnosed through a QSART test and skin biopsy, but it was the sweat glands that were most telling in my case. Tho have recently been told I have large fiber neuropathy too, so not really sure what that means to the earlier diagnosis.
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