PS: you said you might wait to go to the new neurologist. Please don't wait! Seek out the doctors you need -- the PCP, neurologist, rheumatologist etc. Trust me, I know it can be really scary but you need to figure out what's wrong. Finding an answer to your problem might mean finding a solution that could make this go away. Consider that option too (an answer and treatment) instead of fearing a big bad scary diagnosis.