Hi,

Thank you for your lovely posts. I needed a few days away from it all to re group.

I think their reasoning behind no more mg tests is that I've had at least 4 blood tests, 4 sfemgs etc etc between 2007-2009. So therefore in their eyes it just isn't mg.

I wrote to Angela Vincent in 2009 but she couldn't help me.

I've had 2nd opinions and more, unfortunately it seems here in the UK unless you have at least one positive test you can't possibly have mg.

I've told them the ptosis resolves with the ice pack test - they've seen it, it also resolves with mestinon and again they've seen it. However their answer to that is that I make it do it, because I believe it works. How can you argue against something that illogical?

I have no idea how I manage to put this on because believe me I would stop it in an instant! I am a youngish woman I find it incredibly disfiguring, why would I want the negative attention?

I am really stuck for ideas and I'm all out of fight at that moment.

I proved with prisms I have double vision when the nurse did the first lot of testing it lasted around 30-40 mins. I then had more tests with the dr .

Yesterday for the first time since June 10th (this year) I had no ptosis or double vision. Today its back with a bang!

I just wanted to let you all know I'm OK and to thank you for your supportive words

Rach x