Thread: RSD spreading??
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Old 07-19-2013, 11:20 PM
ddswaffer ddswaffer is offline
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Join Date: Jul 2013
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10 yr Member
ddswaffer ddswaffer is offline
Newly Joined
 
Join Date: Jul 2013
Posts: 3
10 yr Member
Default There is help

Reading your message and I know the "freaking out". RSD sucks and the diagnosis is devastating. I have RSD too. My husband researched and I went to Calmar in RI. It's amazing! I wish it were accessible all over the country so people didn't have to suffer and go through ridiculous treatments.
*edit*
-Dana

Quote:
Originally Posted by cozyc View Post
I had shoulder surgery back in november which caused me to now have RSD. It seemed to have spread into my other shoulder, neck area, as my non injured shoulder now imitates my injured one-which I know I haven't injured it. My neck and shoulder area just feel so heavy and a lot of times I feel like my bones are being smashed along with the random aching and electricital shocks-all are less often because of the neurotin but still extremely painful.

Over the last couple of weeks I have had random pains in my feet that I have been trying to ignore. Now they have gotten more often, always when the evening comes and throughout the night. When I wake in the morning I have to walk around for a while and then the pain dissipates and has been disappearing until the evening comes again. The pain makes it very hard to walk. Sometimes it mimicks the smashing sensation when I'm trying to fall asleep and it just plain hurts to walk.

It has progressed the last couple days to be consistent every night instead of random nights of discomfort. My injury is a workers comp case and because of that I am sitting here waiting for over two months now to try and see a specialist to finally try ketamine infusions which now may be my only hope.

Do the symptoms I'm describing sound like it is spreading and if so is there anything anyone can recommend to stop it?? I have been trying to keep up on the treadmill workout starting the last two months to keep myself healthy and somewhat active without causing issues with my upper body but now I am concerned it may be in my feet and then should I not workout anymore? I wish someone could say no don't do it it will make it spread or yes do it it will stop it from spreading, etc.

I'm just really freaking out
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