Oh Pono...you got my vote! I too would like to join in the group hugs!
What can I say but a heart felt sorry...glad I wrote this out....
hard to say without slipping up here!
Just try saying "heart felt sorry" 3 times withoug slipping up! LoL!
I love to laugh....I know this is serious business,
with all you have on your plate....so much....just too much.
I wish I had a majic wand...could use it all around the world!
I too had/have Peripheral Neuropathy...
and a lot of other health issues...
I won't make your eyes glaze over here...
but I was very very ill, fatigued...
I called it Mind sucking fatigue!
I just wanted to pull the cover over my head and just die!
I used to "pray" this prayer..."GOD...either heal me or kill me! I'm suffering!"
I know it sounds angry...but I was dying and suffering terribly.
I'd been seen by many Neurologist, non offered any help...
told me just take anti seizure meds to only MASK the neuropic pain....
NO WAY! I wanted to know wny I had PN when I"m not diabetic!
I too have loads of allergies...
I've had Anaphelactic shock reaction to many medications...its frightening!
I found a way onto a website where Rose here on NeuroTalk answered my post.
She suggested I take a proper form of B12...Sublingual Methylcobalamin B12.
Once I started taking it my fatigue began to lift....
then my Neuropahty began to get better...
within a few months it was nearly gone except feet and hands continued to burn,
but NOTHING close to the pain I had back then.
I went from having moderate sock glove pattern of PN in June,
to complete normal EMG and NC test in October same year! Why? B12!
I thank God I was able to muddle thru the web with what little brain cells were working...
and that Rose is an expert regarding this AND I took her advice and began taking it.
I thank God He didn't answer my anger prayers!
I know B12 is'nt a cure all...but perhaps would help with your fatigue and who knows how it might help your PN IF its caused by a deficiency.
I realize yours may be caused by nerve entrapment...
but at least this is a begining and all the B12 in the world will NEVER harm you!
Maybe caused by medications taken or surgeries you had?!
Mine began after my second treatment of IV Remicade and Methyltrexate I'd been
given to treat Crohns disease.
Then I got much worse when had hours long surgery where they removed several feet
of my small intestines.
Step by step, I got weaker and muscle weakness so bad I used a granny walker.
Then the "burners" turned on higher and PN spread over my entire body.
My B12 level, I was told normal! 232 is NORMAL? OMG!
Rose deserves a Pulitzer Prize for her studies!
Slowly the doctors are realizing they are wrong, but its taking too long
and in some cases people are dying from it, while doctors stand there scratching
their heads and other distasteful appendegas!
There are many ways to become deficient even while having normal range/levels!
While mine was a step by step "process" after every "procedure" trying to heal me,
some seem to happen over night and out of nowhere.
You can read all this info on the Vit/min def forum.
Post your story there (copy/paste it) and ask for Roses help.
She'll be more than happy to help you and educate your doctors on this.
Blessings to you. Cheryl
PS...its easier to read long post when you break the paragraphs up
into smaller "groupings"....
we want to be able to read all you've written
cuz lots of people here care about others...wanna know why?
Cuz they KNOW pain!
We understand only because we've been there, done that!
It's kinda like an all inclusive memership! We're special!
Here's just a few pics showing ways the Lord wants to prove He loves us!