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Member
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Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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Member
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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Sorry for the slight slip in remission. I guess you still need to be very conscious of the effect of temperature. But it is good to here you are still in remission. Now that you know that temperature is your biggest trigger,you can concentrate on avoiding it.
I have had a lot of shortness of breath the last several days. I have a neuro appointment on Wednesday and will bring up a thymectomy. I am afraid to try IVIG again and I understand Plasmapharesis has worse side effects.
I want remission so I will push for thymectomy. If that does not work, I think I will have to go on partial disability.
Your remission gives me hope
thanks
kathie
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