Hi Frogga, I am a new member.

I met someone in California 2 weeks ago with Dystonia. He is having a rough time as well. I told him that my husband has had wonderful reults using LDN for his MS. My husband is back to 2 sports a day and working full time. I have no idea if anyone has tried it for Dystonia, but it might be worth a try. It is non-toxic, cheap to purchase and very minimal in side effects. Most (if any) side effects are usually hard time sleeping, stiffness in legs (usually for MS), and vivid dreams. If one gets side effects they generally go away within the first month.

It just seems like Dysonia is an auto-immue problem and most auto-immune disorders that I know of are helped with LDN. The main thing that it does is stop progression for the ailments it works with. Then we consider it icing on the cake if there is symptom relief as well. My mom finally got on LDN for PD about 2.5 months ago. Mainly she has lost her fatigue and just feels better overall. My husband with MS has lost all of his symtoms and his MRI's are coming back great (no progression and his one lesion no longer enhances). If you would like to read about it, you can log onto the following web page with my husbands story or just look up LDN (low dose naltroxone) on the web.

http://www.webspawner.com/users/introtoldn/index.html

I wish you the very best in trying to find help with this ailment. Kind regards, Aletha