Hi guys, sorry i don't respond very well, I'm sort of new to blogging and forums Kind of a "long time listener first time caller" kind of thing. That night I had that attack was the scariest night of my life. The pain i normally have is achy burning fatigue like pain. Sometimes its sharp quick stabbing type pain in my joints, mostly my wrists or knee. Sometimes its a hard achy feeling in the ball of my left foot. I have some shaking and twitches as well. My left hand shakes alot, sometimes its barely noticable, other times its hard to hide. Ocasionaly my legs will shake as well. That night I had the attack i couldnt control the shaking. My pain shot way up, you know how doctors say on a scale of 1-10? i usually anwser 6 or 8 depending on my pain for the day. That day i was at 10 and with that the shaking on top. It was a hot achy burning feeling in my thighs and calfs. My shoulders had such a stiff achy pain i couldnt lift them. I work in trucking on a dock. I got off the dock and hid in the parking lot until it passed. After the event i wrote down as much as i could remember so i can tell a doctor, which i have. Since that night i havent had any extreme episodes. I realize now posting about it the way i did was wrong and i made it seem so scary.
At the moment im still being tested for auto immune diseases neurological things and cancer. My latest blood work came back with postitive ANA 1:180 Homogenous
and Positive Neuronal (V-G) K+ Channel AB, S, which is antibodies in the potasium channels from what i understand.
This can indicate cancer or autoimmune diseases.
So i dont have alot of info to post and im new to this so i do apologize for the long posts and spotty information. Feel free to message me or email me if you have any questions.
I just want to talk to other people going through some of the same stuff really, not looking for miracle answers. Just anyone who understands the obnoxious "testing retesting then reretesting the tests so lets test the testers. While we wait for the tests, take this test on the tests your testing on."(thats a joke, baaaazing!) Trying to stay positive.
From what i read that