Hi. As I'm sure all of you have experienced, the time it takes to get help due to long waits for appointments with specialists can be lengthy. I have Myasthenia gravis, but recently some of my weakness and other symptoms cannot be explained by MG. An ER doctor frightened me about MS, and since then I've been trying to read about MS online, which, of course, has led me to the vast sea of MS 101 readings, which really can't address the variety and degree of symptoms encountered by people who have already been diagnosed. My own neurologist is sending me for a sleep study first to see if the fatigue and daytime sleeping could be a symptom of MG related apnea. I don't know if these symptoms are anything anyone here might recognize, and I plan on reading more. In the meantime, here's what I've been experiencing:

Once mild paresthesia which began a few years ago, recurred in October with tingling cheeks, and became chronic after a recent episode of increasing problems. The sensations that remain more or less constant are one icy numb cheek, numbness in both hands but especially left, numbness in left toes and ball of foot. Inability to feel cold on outer side of left leg. Increasingly painful shock feelings in left leg. Noticeable strength deficit in left hamstring and leg in general. Cold feeling in right ankle that now is painful but not tender to touch. Feeling of tiredness that begins at about one in the afternoon, sometimes results in unplanned sleeping and always results in napping over dinner hour, brain fog (could be from my current use of methylprednisolone), inability to finish sentences often, and occasional forgetting of words. In October, I complained of an "icky core sensation" that I was having around the area of my diaphragm. It was like a tightening that I blamed on my weak muscles as I attempted to sit up straight in my chair (often an issue with MG), but it confused the neuro I had at the time. It didn't really hurt but felt like a tightness or constriction inward under my ribcage. I also have it on the inner thighs.

I'm worried about some small white spots on a recent MRI because I have been taking a very high dose of methylprednisolone, which could suppress problems that might be occurring. Of course, I'm having trouble getting my past and current images to one doctor.

I'm just as interested in knowing if these symtoms DON'T sound consistent with MS. Thanks in advance for any replies. Much, much appreciated.