Quote:
Originally Posted by cheryl1593
Thank you nospam, I was pretty sure that TOS just causes pain period. These doctors just really make me want to beat them up so I can finally feel better. lol
I do see a new pain management doctor and he is the one needing documentation of WHY I have pain. He is not a neurologist though. I go to see a shoulder doctor in a few months so maybe he can give my pain doctor what he needs.
The whole pain management thing is just getting ridiculous now with the problems of people selling medicine on the street. I never had problems in the past as I have verified reasons for pain.....all aliens have pain!
I was even born in roswell new mexico, so I am pretty sure I am alien of some sort.
Funny that I worked as a nurse for 20 years and only saw one other person with C-ribs and extra parts like me. but wow what a bad place to have a defect, that bracial plexus sure can generate lots of pain. I am doing really well considering my situation and I only need little bit of pain medicine and I am ok. Just seems that to get pain management everything has to be EXACTLY documented.
If the shoulder doctor does not help me then I will have to go to a TOS specialist here in houston. It sure is gonna be weird when I ask a new TOS doctor why my back hurts duh! 
thanks everyone for taking the time to try to help me. |
Cheryl
I agree with nospam & olecyn.....a neurologist will likely help if nothing else diagnosing the nerve pain....I have had pain,tightness & strange sensations at my surgical site from the get go and now my situation has progressed to what I believe is Peripheral Neuropathy? or CRPS? as it affects my arms and legs especially at night while sleeping....so I have just scheduled an appointment with a neurologist who also specializes in neurophysiology, this is someone who if I am understanding it correctly is able to connect what is going on in relation with the central system and the peripheral nerves. I am just under 3 years post surgery and have not had much luck in any one giving me answers.
As far as the brachial plexus if those nerves are messed with too much that when they try to heal scar tissue can cause pressure on those nerves and that equals nerve pain.