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Member
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Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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Member
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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wbdolphin, thanks so much for your insight. I am in a similar situation as you were. I am a 53 year old female who has had moderate MG symptoms for 3 years after abdominal surgery.
I have done a lot of online research on thymectomy. Several reputable medical sites quote a 30% chance of remission lasting 5 years, 85% improvement in symptoms and virtually no one gets worse. There is short term exaccerbation of breathing issues. I did find one medical site that said there was a 1% mortality rate.
Statistics say 80% of MGer have abnormal thymus. I have read so many personal stories like your own where the thymus scan seems OK, but they find after surgery that the thymus was much larger than they thought or showed hyperplasia, some even had tumors that were malignant. I am surprised that thymectomy is not used more.
I just figure it is my best chance.
thanks
kathie
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