Agreed. Nothing I did helped shop mine spread to all 4 limbs in the first 5 months. I thought it was my fault but my physio has put my mind at ease. Probably the stress was making it worse. lol. We now work on keeping my body in a state where I can cope with the progressionand keep my limbs useable. It will do what it wants, its up to us to deal with it best way possilbe.