If slowing the rate works, than it is the best thing for you. what can you do with that time you have saved if you are totally miserable after and have to go to bed? I'd rather sit all day than have that awful sickness. I got through the first day ok, but woke up with a killer headache the second day and only got worse from there. Even with Benadryl, pseudo fed, Tylenol and a huge dose of ibuprophen, along with decrease in infusion rate, I got sicker as the day went on. Fever, sore throat hugely swollen glands, couldn't move my eyes or head without excruciating pain. Trying to touch chin to chest shot pain down my spine.

I am back to getting a half tablet of mestinon stuck at the back of my throat again, so I am thinking that the benefits do not outweigh the risks in my case. I go to the plasmapheresis doctor tomorrow, so fingers crossed I can start that again.