Originally Posted by Unsure81

Thanks gr8ful - to be honest this is the second time I have been told this- I spoke to a Myasthenia Specialist Nurse over the phone who said exactly the same thing and she would expect both sides to be affected- maybe it's on the Uk checklist of things needed to diagnose MG! . Neuro #2 is a Neuromuscular Specialist who takes National referrals here in the Uk to his Myasthenia Clinic and has also been involved with research into MG with Angela Vincent! In his defence he said there is nothing else it could be and my symptoms are highly suggestive of MG excepts this one sidedness - it's just getting a test to prove it so I can hopefully have some help that is the hard part.

As I've said on a previous post - I wish these Neuro's would all get together and decide what symptoms determine a diagnosis of MG and actually try to help people instead of just discounting it! They haven't got a 100% reliable or specific test and until they do there needs to be some consistency to what is considered MG symptoms not just their interpretation of the list which seems to vary more wildly than our fluctuating symptoms themselves!!