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Old 07-24-2013, 02:26 PM
bny806 bny806 is offline
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Join Date: Nov 2011
Posts: 576
10 yr Member
bny806 bny806 is offline
Member
 
Join Date: Nov 2011
Posts: 576
10 yr Member
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Sorry to hear about the pills getting stuck again - that's frustrating i'm sure! I know I always feel more anxiety when I'm not sure if I will accidently choke on a pill or food when my swallowing is weak... not a fun feeling!

Yea... i never try to push it past 100 anymore.. and I couldnt' remember if on the way up to 100 we increased the rate every 15min or 30 usually.. I guess the answer was 30 because now that the tylenol pre med is wearing off I am spiking a temp again - man.. it's weird how sensitive I am.. seems like everyone else in the infusion center always goes at full speed (210).. I didnt let them increase it that quickly the 2nd ramp up - we waited 30 min... just 15 min apparently makes a big difference - who knew! I'm always learning with this stuff!

Good luck tomorrow! I hope they get you all set up and quickly to do plasmapheresis!!! glad it has less side effects for you and works so well! Sure wish there was just a simple magic pill and that's all any of us ever had to do!
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