Hello.
I found this forum after som googling and looking for answers. You have to excuse my pretty bad english, I'm from northen Europe.

Two months ago I did a mri because of my hip problems and pain. I have ehlers danlos syndrom and they subluxate.
On the mri they found tarlov cysts. I was not told how many, just "multiple bilateral nerv root cysts in the sacral canal, and one about 5 cm pre-sacral".
I have been trying to get more answers from my doctor, atleast how many cysts I have and if 5 cm is small or big?
He says i dont know yet and have ordered a new mri and I have to wait a couple of months.
I have ordered my mri pics and can clearly se some of the cysts.

My doctor thinks that many of my pain problems come from the cysts. But he also told me that there is probobly nothing to do with them to make me better.

Is 5 cm a big cyst?
Can anything I do force them to grow more?

I just can't stand waiting and waiting to get more information about these cysts from my doctor.