Almost 4 years ago now I was diagnosed with having a Syringomyelia. No talk of CM though. I've had 1 MRI with contrast that diagnosed the SM and I have since had a follow up MRI without contrast that apparently showed no changes in the size or shape. The neurologist I spoke with gave me about 5 minutes of his time, told me the SM is not causing my symptoms and instead it's atypical migraines. I've never had a migraine in my lfe and last I checked the symptoms I have are not caused my migraines. I have a lot of pain everywhere, brutal headaches that feel like I'm being stabbed in the head, lots of neck pain, muscle cramps, spasms, twitches, stiffness, etc.

I've seen my family doctor about 100 times. He doesn't even know what SM is. I've seen numerous internal medicine specialists, they also don't know what SM is.

I have an appointment with a neurologist in October for a second opinion, but I fear that he also won't fully understand my condition.

Are there any doctors in Ontario I should be seeking out? I'm desperate and can barely handle the symptoms anymore, but every doctor I've ever seen has been useless