I signed on for this too...same rationale as Perry. I head to the NIH on August 5th for screening. They are pretty comprehensive includung the U Penn smell test, genetic workup, and a DATscan. From my viewpoint, even if I do not qualify for the trial, I will have the most advanced diagnostic tools out there to confirm my diagnosis. Not a big doubter, but I have some atypical things, so I really wanted to be sure before I went with any brain invasive procedure. The best part is that they do ot make us endure a drug washout! Given they pay for everything for me and a caregiver, this is almost a mini vacation.

Hopefully, I make the cut and can share what happens since there is no control group.


Laura