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Old 07-26-2013, 05:50 PM
joefnh joefnh is offline
Junior Member
 
Join Date: Jun 2013
Location: New Hampshire
Posts: 33
10 yr Member
joefnh joefnh is offline
Junior Member
 
Join Date: Jun 2013
Location: New Hampshire
Posts: 33
10 yr Member
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Willie that's awful....I love the 'syndrome' with doctors, that when they don't know what it is, it must be the patients 'fault'.....meaning psychological in nature. I have run across countless stories on the web from people suffering from MG and could not get a diagnosis until they got past the 'it must be psychogenic' in nature.

If you read a couple of these short stories in this page you will see how bad if can get with doctors at times. Glenda's story is a real eye opener (top of page)

http://www.myasthenia.org.au/html/experiences.htm

For me a little over a year ago I had some mild weakness in my legs and then last December I started having voice and swallowing problems and just after that I noticed the double vision. In late April the generalized symptoms came on hard and fast, I was very weak and started having breathing problems. I was diagnosed in a couple of weeks.

Since then, the Mestinon works well and I had my first 5 day treatment with IVIG in early June. It worked well, but I had a bad reaction and ended up having blood transfusions. I'm still feeling the positive effects of the IVIG, but I do notice them slowly wearing off. I'm going to talk to my neurologist during my next appt in August about a thymectomy.

I hope you can now get the treatments you need Willie

Take care

Joe
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