Welcome to Neuro Talk. You do have a right to complain. What you are experiencing is not easy. If you have a good doctor who can empathize, this would help you. I also think council would be of benefit, just to be able to cope with all that is on your plate. This is the place, to meet some good people who will listen and try to respond to you. You are not alone, there are many of us who go through lots of medical issues, and then have families that just don't understand all the time. We will be here to listen and try to help. Have you gone to several neurologists for opinions? ginnie