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Originally Posted by missestlewis
Hey everyone - You have probably answered this question a million times for others but I am pretty desperate at this point to find out information and just entirely to exhausted to keep searching!
So my little brother was injured about 2 weeks ago in a motocross accident and has very severe brain damage or a "TBI"..
He has now hit the "storming" part of the injury and while we are being encouraged that the storming is good for Andy, I don't see that positivity in all the things I am reading.
I understand the overall of the symptoms, and realize there isn't any actual scientific explaination for it happening, but is this a good thing?!
From what we are being told the storming is his brain actual trying to "reconnect" - which would be a good thing, but like I said - the things I am reading are not giving me much hope!
Please explain, any information that you might have would be great but my main concern is - is this good for him to be doing!??
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I use a different search engine that google, and found this reference fairly quickly, as well as a few others.
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Also, pubmed has articles on this subject but to access the content requires registration. I believe registration on that site is free.
I'm thankful you asked this question. I had no idea of "storming". Connects some missing dots for me back to my early post TBI days. From the inside perspective of a TBI survivor, who had no family support at the time, it was very distressing and embarrassing to experience these episodes having no clue as to why they were happening nor even why they were happening.
My other injuries were so severe, that the hospital attributed everything to severity of internal injuries - including a drop in my Glascow score from 13 at the accident scene, to 3 at hospital for a period of hours. Persistent retrograde amnesia x 3 in hospital, diagnosis they gave was deep cerebral concussion. Yet no mention of TBI in my hospital records.
I was forensically diagnosed several years later with TBI: closed head, coup contrecoup/diffuse axonal injury and cumulative frontal lobe injury.
Your little brother is very blessed to have such a caring and concerned sister.
It appears that this storming is episodic in nature, and consistent with diffuse axonal injury. One way you can help is to try to assist in identifying what triggers these episodes for him.
In retrospect, for myself I can say that in the early weeks following my apparent storms, sensory overload was a big trigger as well extreme fatigue, and way too much stress.
Your little brother's triggers are going to be specific to him.