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Senior Member
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Join Date: Oct 2010
Location: ga
Posts: 1,471
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Senior Member
Join Date: Oct 2010
Location: ga
Posts: 1,471
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Thanks so much. I have voice recognition on my iphone so I thought I'd ramble about my back story. If my hands were just numb I'd get over it but they are very fatigued. I can only barely work part time thanks to copying and pasting, importing etc, voice recognition, and I double-click on the mouse by holding a fat marker in my hand. This has definitely gotten better over time But its still nowhere near normal.
An upper extremity specialist and a neurologist suggested I had carpal tunnel. Until we had the nerve conduction study... But that didn't make sense to me because my pinky and my little finger are numb just a little bit less numb. I have received a steroid injection in my carpal tunnel and it didn't do anything, it didn't hurt or anything. Also my wrists are very hyper mobile and a few times ive bent them in odd positions and sent a jolt into my carpal tunnel. It didn't hurt and only lasted a second. My wrists really don't hurt at all and I think the strength in my hands is "normal". But I do feel abnormal in my pronator area of my elbow, like the pronator teres area into my bicep.
HISTORY----------------
I had a few zingers and zappers prior to my fingers going numb and felt weird "swelling" sensations and my arms in beforehand. Then in March 2010 I was playing Wii and using my laptop and I can't remember.., When exactly but I basically developed shooting pains up And down both my arms right in the middle of the elbow... I couldn't bend my arms after that for a day or two I had to keep them straight And they were very swollen. I had pain bending my arms after that for about six months.
Then in August 2010 one day for no obvious reason I noticed I could double-click on a mouse again. And my fingers werent numb, it was so weird But I didn't have health insurance and I was terrified of them going numb again. My dad told me my arms were too scrawny and i needed to strengthen them. days later i did and then I swelled up and went numb again And have been since. I was doing a lot of overhead exercises and I'm sure I had terrible form Because I am grossly hypermobile.
I have a rare genetic syndrome called Ehlers-Danlos syndrome. My shoulders have never dislocated but they both wing sometimes. And ever since this all started I have to concentrate on "holding my right shoulder up". I was in physical therapy for a year and a half for posture "stuff." I do small pilates exercises everyday but the shoulder exercises she gave me weren't working enough and extremely costly so I have to strengthen front of a mirror to see if my shoulders wing. It's still something I have to think about all the time. My left arm doesnt wing as bad, only sometimes. So my fingers always feel numb and fatigued 24/7 but if my rt shoulder is winging i feel "heavy" even more so.
Six months ago I was stretching my pec minor (which isnt tight anymore) and I over did it. I have a small numb patch on just my rt arm and when I look at a dermatome map it points to my auxiliary nerve, which makes sense. But it's associated with crutches and dislocating your shoulders which I obviously haven't done yet.. But I think it's just a testimony to how loose my shoulder can be and how much I can hurt myself without realizing it.
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The neuro I went to was at Emory... I'm not even sure how to find a good neuro or maybe I need a physiatrist. I've been to about 15 different doctors/physical therapists. The only interesting thing that came out of it was I found out I had a severe magnesium deficiency, which I have since fixed.
I have mild Raynauds so even autonomic neuropathy makes more sense than small fiber but I still associate the numbness with two events, particularly the SHOOTING PAINS. And numbness is constant so that makes me think it is large fiber.
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last felt my fingertips august 2010 .
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