Quote:
Originally Posted by Liftyourhands7
Hi everyone, I haven't been on the forum in a while, just had to take a break away, I hope all of you are doing ok. I have a question about burning mouth syndrome. I have Small Fiber Neuropathy, I have had SFN for 2 years, but in the past month I have developed Burning mouth Syndrome, I have read that SFN can cause burning mouth syndrome but I'm hoping someone here has more information on this condition and maybe can offer some advice on what kind of help I should seek. I'll tell you this, SFN can sure reek havoc on your body. As always thank you for your help. Jan
Luke 1:37 For Nothing is impossible with God!  |
I, too, have burning mouth syndrome. It began about two months after the initial onset of other neuropathy symptoms. My mouth is burning now... tongue, gums, palate, lips... even down my throat. I have body-wide neuropathy so it sort of blends in with everything else but probably is the most distressing of my pain. I take Gabapentin (1800 mg daily) and Nortriptyline (10 mg) and it does help but never really takes it away. I have been tempted to try Cymbalta, but hesitate after reading the 20x20 package insert of side effects. You'd think I'd just grab it and take it given the pain, but I've read so many times that it "works" until it "doesn't work" and then you're left dealing with really nasty withdrawal symptoms, and I really don't think I could handle anything else. Yes, SFN does take its toll on both the body and spirit. Lift our Hands and ask for enough grace for the day, right? So sorry you suffer. No one (except someone experiencing it) can really understand how life altering this is. Blessing for your day
