Quote:
Originally Posted by missestlewis
Yes I am aware of what it is, however there isn't much information at all on it - I am seeking out people who has been through it; for information.. any information that people can give me would be great but I guess I am looking for the experience of it all.
Thanks!
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Please clarify a bit what you're needing. Are you trying to understand better what your brother is experiencing from the inside--->out view of tbi?
I've been through it from the inside tbi--->out
Or are you needing more from the experiences of others who have been through this from the perspective of outside--->inside tbi perspective?
I think one poster mentioned a video titled "You Look Great". It's an outstanding inside tbi--->out perspective. John's injury was many more years recent than mine, and he had really great rehab and support systems. I have one of the first complimentary copies of the dvd version. He and his son worked together to put that together. Well worth a view. Insightful in an understanding way so that those outside of TBI can get a view of how some things really change for us.
In recent years, John has been trying to distribute copies to TBI rehab facilities all over the US.
TBI and all of it's "features" are as unique as a fingerprint. It is as complex to the "patient" as it is to loved ones. So there really is no simple answer that anyone can give you regarding your brother that is going to "fit like a glove".
The storms in the early period following TBI can be very confusing as well. When I was experiencing mine in the early months post injury, it was really weird for me. They'd come on suddenly out of nowhere and pass as quickly. Very confusing to me.
Totally out of character for one thing. At the same time, aware it was happening - this then "nameless thing", at the same time feeling more like an observer when it was me actually having the "storm", and being completely unable to "rein in it". It was my "mouth motor" that was most affected, well and emotions too.
There was one store I had a "tbi storm" in that I had so embarrassed myself, I never went back in there. It was about 2 months after my injury. The really embarrassing part was the whole store heard me, and yikes why did I have to be blessed with a "stage voice" that projects really loud!!??
By the way, if I may add this also. Waking up so to speak with a TBI, where brain doesn't quite work the same as it did, well..it is beyond frustrating. I can't speak for other survivers, but I did then and I still today remember who I was before and how dramatically so much changed like flipping a switch.
It was a very frustrating adjustment period, and part of adjusting was also going through the various stages of grieving.
I don't know that this helps you in anyway, but I figured I'd post it anyway.