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Old 07-31-2013, 06:51 AM
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reverett123 reverett123 is offline
In Remembrance
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
reverett123 reverett123 is offline
In Remembrance
reverett123's Avatar
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
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Quote:
Originally Posted by 12stargate View Post
Dear Vicky;
I am so glad you wrote!!
I am in 1st stage PD for 3 years,
and the heat and humidity has bothered
me terribly!
What do you do to take care of yourself in this kind of weather?
Lovingly, Eva Gabrielle
Yes, heat and cold are a challenge for most PWP sooner or later. It disrupts our ability to keep things under control. (It is strange that so many of us struggle for control at both micro and macro levels even long before diagnosis.)

One way to look at PD is to imagine an old fashioned child's top. You would wind a string around it and secure one end of the string to your hand and leave the other secured simply by the wrapping itself. Then, with the right flick of the wrist, you would set the top to spinning. After some initial wobble it would become almost magically stable and could continue spinning even as a child's hand sought to test its limits. Eventually it would begin to lose spin and go slower and slower. Wobble and vulnerability increase and recovery becomes less certain. A child's pudgy finger or a heat wave becomes a challenge and a threat. Each day begins with a certain amount of spin and that amount gradually declines over time.

There are many challenges to maintaining our spin / our balance / our homeostasis. We generally label them as "stress", take the bit in our teeth, and go on. A big mistake for most of us. Pamper yourself. Neither too hot nor too cold. Just right. The Goldilocks Disorder.
-Rick


Quote:
Originally Posted by 12stargate View Post
Dear Vicky;
I am so glad you wrote!!
I am in 1st stage PD for 3 years,
and the heat and humidity has bothered
me terribly!
What do you do to take care of yourself in this kind of weather?
Lovingly, Eva Gabrielle
__________________
Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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