Quote:
Originally Posted by zookester
Hello Liz,
Well the good news is that you have certainly caught this early and as you know that does offer the best possibility of remission. Now you need a great team of doctors who can help treat you with remission in mind. It sounds a little confusing on who is treating/diagnosing etc., Who diagnosed you with RSD to begin with; was the surgeon or someone who this doctor referred you to? What type of RSD/CRPS do you have; is it a result of identifiable nerve damage? I'm not sure why the doctor stated you can't have RSD because you can have a conversation and don't need meds.. that is confusing because having a conversation or not is not diagnostic in any way regarding RSD/CRPS 1 or 2. Sounds like you need a doctor for your original wrist issues and then another who will treat the RSD/CRPS and they don't need to agree with each other because in all likely hood the surgeon who performed the surgery isn't qualified to treat or diagnose CRPS. I would make sure you have a good team in place.
What was the reason for getting and attorney at this juncture? Was it for the WC case or something related to RSD/CRPS? This can be a tricky place to be in if it was for the latter (at least at this juncture) and I would caution you on this. PM me if you have any questions about that.
Regarding Vitamin C and or magnesium or Epsom Salt baths - no they aren't likely to interact with other medications but always err on the side of caution and check with your pharmacist. If the lidoderm patches are helping keep using them up to 12 hours per day - they help more the longer you use them. You might also ask about Voltaren gel as this compliments the effectiveness of the lidoderm and can be used during the 12 hours off time. Are you in physical therapy?
Try not to think long term about this right now.. focus on healing right now and stay positive about your recovery as this will help get you to remission and worry about life with this will surely inhibit that.
I'm not familiar with WC cases regarding this so I am sorry I cannot comment on that end. I know it can be a struggle but being respectfully persistent with your treating doctors, employer & L&I case manager will be beneficial as you walk that path. Journal your daily activities, pain levels, medications and side effects will also help as you go through this.
Keep moving as best you can and try hard to get plenty of sleep - your body does it's healing when it is sleeping
Tessa
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Tessa,
Sorry if it sounded so confusing i tend to jump subjects like that when i get upset. My original surgeon refused to say anything is wrong with me. Ive been diagnosed by two doctors who i saw with my private insurance, as well as a wc nuerologist and the wc pain management dr ive been sent to. My hand surgeon says theres no way i have it since I was able to function in a conversation as in I wasnt in debilitating pain and wasnt dripping sweat down my arm. That since I was able to do more than cry I couldnt possibly have rsd. ( which as far as I understand those are the symptoms of an extreme case...and not to mention does he not understand the strength a person can make themselves have when trying to reviece help?) I went to see the pain dr on monday and he gave me different meds to help including pain medicince and ones to make me able to sleep again. He also warned me that my hand surgeon refuses to admit that rsd exists and Im not the first one to come to him with these complanints of pain being ignored. yesterday when i saw my surgeon, he told me AGAIN ( even after FOUR drs diagnosing it) that I dont have rsd and that I need to see a pain dr who used to be HIS anesthesiologist because I dont need ANY medication, and that I didnt need to do anything except go back to work. That is why I called a lawyer , I was unsure of where I stood. As did I need to go see this new dr my hand surgeon was recommending, or could I choose to stay with who Ive seen as he is the first dr whos really helped me? She isnt getting involved, but she did talk to me on the phone for forty minutes telling me where I stand, what my options are now, and what authority my hand surgeon really has in which drs I go see ( turns out absolutely NONE at this point). I called one who from what it showed in my incessant googling (lol) specializes in rsd and wc and is highly regarded.
The original injury was from work, I do a job thats basically all repetitive motion. I thought I had carpal tunnel, so I claimed a wc case. When i went to see the surgeon, an mri showed that I had a torn ligament in my wrist. The surgery went well, and everything was going good until about a month and a half after, I started having this new EXTREME pain in my wrist. I told my surgeon, and he kept saying it was normal. The pain got worse and traveled up my arm gradually, and its now focused mainly in my elbow but goes all the way to my shouler, with the sensitivity and burning in my hand and recently in my forearm. The dr kept insisting I injured myself in my sleep, even going as far as saying my hand wasnt swollen and blue ( both the nurses I saw ten minutes before both were like OMG something is wrong look at your hand) which is when I decided I needed to be checked out by somebody else.
One dr insisted that he wanted to burn my nerves apart right away, which seemed like he was rushing right to the end. I didnt feel comfortable with that and havent been back to see him. No, no physical therapy has been started but I was shown a bunch of exercises to start trying to do at home and he did recommend to try to do as much as possible. Ive been trying to get up and do more stuff around the house using my arm, Its just been a struggle. My pain is managed if Im not using my arm but as soon as I start trying to get up and do stuff it comes roaring back which makes me just wanna go back to laying down and doing nothing.
Im going to go to the store today and get the vitamins and EPSOM salts and see how those help. I hope this post made a lot more sense lol. I just woke up so I'm completely clear headed and tried to explain myself the best. I guess Im just used to my friends n fam being sick of hearing it so I try to condense stuff down as much as possible.