Quote:
Originally Posted by Brambledog
Sorry you're having such a rough time at the moment Tessa...
I can't think of any way of protecting yourself from the water temperature if it's causing you pain because it's too cold  I had some physio in a nice warm pool around the time my CRPS was diagnosed, and even that hurt sometimes - since the CRPS I just can't bear cold water, and I just have to not go in colder pools. I'm lucky to have a warmer pool nearby (although sadly the price is too rich for me at the moment), but if I had no other choice than a cold pool I still couldn't do it. Even the buoyancy of the water and ability to do more exercise just isn't worth the pain and risk of spread.
I'd say just don't do it. That horrible level of pain is your body shouting at you to stop, and it's definitely worth listening. Try to find a warmer pool (most will tell you their temp if you ring and ask) or just talk to your doc/physio - physios tend to know where warmer pools are, or can discuss an alternative therapy for you.
Take care, and I hope your pain gets more manageable very soon, its horrible when you just can't get away from it...
Bram. |
Thanks Bram,
So I think maybe I have found a couple of ways to combat the effects. First I went out yesterday and purchased legging style rash guards like surfers wear. It is not as heavy as a wetsuit but I am hoping it will create just enough added warmth. The other issue I was having is that while kicking or walking in the water the pressure from the water on my thigh is also causing increase in the electrical lightning shocks down my leg. I am hoping that the light compression of the leggings will prove to be beneficial with that issue. I think the edema in my leg gets pushed around by the water or at least that is my theory. When I got home yesterday after my swim I got into the hot tub and this did help settle things a bit. Afterwards, I applied the medicated compound cream and by 9PM things were finally at a manageable pain level.
It would be so nice to have a warmer pool near by but, even this pool I went to was a 40 min drive each way in the summer and up to an hour or more in the winter. We may just have to find a way to gather enough funds to install one of those endless swim spa's.
Living in the mountains where snow flies early and stays well into June most years, might really wreak havoc on me since the onset of CRPS II. I am brainstorming daily on how I will keep my leg warmer so that I can enjoy all the many things we do in the winter for fun. Not ready to give up yet or think about moving.. must find solutions.
My doctor just signed off on my hunting/fishing disability card so that my sweet husband can assist me and we can drive on roads we would normally walk during hunting season. This will be a huge help in keeping my legs warm and allow me to be part of this years season. Trying to find my new normal.. and adjust without giving up!
Again thank you Bram for your input and kindness,
Tessa
