Thread: Thinner lightweight people have more risk of PML on Tysabri
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Old 08-03-2013, 01:46 PM
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Natalie8 Natalie8 is offline
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Quote:
Originally Posted by Lynn View Post
Hi Natalie

Do you fit this criteria? I do, so it will be interesting to see if my Neuro suggests a change in my dosage schedule.
Hi Lynn,

Yes I fit this criteria (I'm very thin) but I'm JCV negative (knock on wood!). However I get the drug every 8 weeks now because when I did it every 4 weeks in the beginning I started getting really bad UTI's. But now that makes sense because maybe I was more immunosuppressed because I'm light weight and therefore more prone to bacteria and viruses.

What I find amazing is that it took them this long to figure this out, and only because one doctor thought to investigate!

Yes, I would definitely bring this up with your doctor. I'll be interested to see what your neuro says.
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