Hi, I am Scharla Foryszewski from west Texas. After a car wreck four years ago I was diagnosed with post concussion syndrome...Next Hashimoto and had my thyroid removed...I got sicker and sicker and was diagnosed with Lupus,Sjogrens, and Raynauds. I also have fibromyalgia. About six months ago I was diagnosed with Myesthenia Gravis.
It seems I am autoimmune magnet.
Along the way I have been on prednisone and Methotrexate...spend 24 days in hospial with pneumonia. I have osteopenia, cataracts and several chipped teeth that will habe to be capped....due to steroids.
I am now on Mestinon and Cellcept for the MG, I am on Neurotin for fibro...and Plaquenil for Lupus.
The MG is really taking its tole on me. I have had to get a scooter as I am so weak and cannot get out of the house without it. The MG started in my eye with droopy lid. It is now in legs arms and recent lung testing shows I have a lung problem that is indicitive of MG>..so that is when I was started on Celcept.
THis is a question I have....THe cellcept is making me weak and my hands are peeling....could you tell me if it made you weak..anyone or if you had peeling skin on hands? I just don't want to get so weak and all that I end up in hospital...It seems my breathing is not as good as before Cellcept. I live in fear of stopping breathing. ANy help will be appreciated..
Hugs,
Scharla