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Old 08-04-2013, 07:43 PM
tealbingy tealbingy is offline
Junior Member
 
Join Date: May 2012
Location: Southeastern PA
Posts: 24
10 yr Member
tealbingy tealbingy is offline
Junior Member
 
Join Date: May 2012
Location: Southeastern PA
Posts: 24
10 yr Member
Default Mild symptoms

My hubby is sero-positive, diagnosed 3 years ago after experiencing ptosis and diplopia. An alert ophthalmologist sent him to a neuro-ophthalmologist, who performed a few physical tests, then had my hubby get blood work, which was conclusive for MG. Meanwhile, all symptoms disappeared for 16 months. When they returned, he first had a little ptosis, then began with generalized MG swallowing issues. We found an excellent MG neuro-muscular specialist, who prescribed Mestinon.

Now, for a little over a year, he varies between 2 and 3 doses of Mestinon per day for swallowing. No muscle weakness, heat sensitivity, breathing issues. The neuro-muscular specialist says that the longer one has little to no change in symptoms with MG, the more likely the condition is to be mostly a nuisance in one's life. That's where he's at, and we pray that he will stay that way. But if not, it's so good to have forums like this where people can share their experiences. Hang in there, and try not to stress over this - stress is bad news for auto-immune conditions.
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