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Old 08-07-2013, 04:20 AM
CRPSsongbird CRPSsongbird is offline
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Join Date: Nov 2012
Posts: 407
10 yr Member
CRPSsongbird CRPSsongbird is offline
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Join Date: Nov 2012
Posts: 407
10 yr Member
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Quote:
Originally Posted by liz0323 View Post
I was just recently diagnosed as having crps. I was forced to go to 4 different doctors and finally went to my first pain managment appointment monday. Every DR. agreed on what I have. I was wondering if maybe anybody could give me advice on a few different things. First off, this happened after I had surgery on my wrist through a workers compensation injury. Any advice on dealing with workers comp and rsd? Its spread from my wrist up my whole arm already. My biggest question... I'm only 26. Im so scared of a life of this. How do you handle this emotionally and mentally without falling apart? My dr has told me this was ignored for too long by my surgeon and theres no chance of it ever going into remission. I wanted to be able to talk to real people who deal with this instead of different drs who all have a million different opinions and websites which just confuse me more.

Liz


besides finding the right combination of medications. I would highly advised finding a therapist! The one I worked with did hypnotherapy. No it doesn't make you cluck like a chicken or anything. But it would help center and reground some of my more anxiety type feelings with this condition. You wil have good days and bad, and yes lots of pain. Living with a chronic pain syndrome is very often depressing. And its not something that's "wrong" with you. Having chronic pain will depress anyone at some point. I have CRPS in my left arm so I know how frustrating it can be. I did (VERY gentle) physical therapy to help regain some range of motion. Also learning to adjust your daily life enough to work around your arm is key. And as long as you can do it WITHOUT causing more pain. Try to use the effected limb as much as possible. If you can't don't! However you muscle will start to atrophy and kinda lock up without using it to some degree. It is very hard to learn the balance. My physical therapist told me I needed to stop using it BEFORE it started to hurt more. A very tricky thing to learn trust me. Try and find a specialist in your area who has experience with CRPS and ask them the same things you are asking us.
I am soory to hear you have been diagnosed with this. It is a long hard road but you can find a way to live with it and still have a full life. Remember the more stressed you are the worse the pain will be too. Try to keep calm as much as possible and find a medical team who can work with you!
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